The simplest way for most people to complete this second questionnaire will be online. This will take around 25-30 minutes to complete. You can take a break during the questionnaire and come back to where you left off.

But if it’s easier for you, we can send you printed versions of our information and second questionnaire. We have someone you can talk to who’ll take you through the second questionnaire over the phone, filling in the answers you give them.

If this is what you need, please contact us to arrange this. You can contact us at or phone us on 0808 196 8664

We have limited capacity and so joining by post or phone will take a little longer, but it’s really important that you do what’s best for you. We’re really keen to include you! Thanks in advance for your patience as we get things set up for you.

Watch our webinars to find out more

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research