*To complete the second questionnaire you will first need to login and then follow the instructions below.

How to complete the second questionnaire online:

  1. Go to Loginpage and select ‘Log In’
  2. Log in your account using the email address and password you previous signed up with.
  3. Read the questionnaire introduction.
  4. Select “Next” to change pages.
  5. Answer the second questionnaire.
  6. Submit your answers. You will receive a confirmation email.

Useful tips:

How can I pause, save my answers and return to the second questionnaire later?

You can log out at any time during the second questionnaire and you can take as long as you need to return to it and complete it. Your answers should be automatically saved if you log out from your account.

In order to log out, click on the blue box in the right upper corner of the second questionnaire portal (with a “person icon” on it) and select the option “Logout”.

If you have any issues, please contact our team by email at  info@decodeme.org.uk.

I cannot see the second questionnaire in my webportal, what should I do?

If you are having issues loading the second questionnaire, please consult this FAQ for more information.

Completing the second questionnaire online is too difficult for me, how can I participate?

If you have problems completing the second questionnaire online, please let us know and we will send you a paper copy of the second questionnaire. Please send us an email at info@decodeme.org.uk or phone us at 0808 196 8664 (Mon-Fr 9 am-5 pm).

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A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research