The simplest way for most people to join will be online. You’ll need to complete a questionnaire about your illness and symptoms, which will take around 20-30 minutes to complete. You can take a break during the questionnaire and come back to where you left off.

But if it’s easier for you, we can send you printed versions of our information and questionnaire once recruitment opens. We will also have someone you can talk to who’ll take you through the questionnaire over the phone, filling in the answers you give them.

If this is what you need, please contact us to arrange this. You can contact us at

We have limited capacity and so joining by post or phone will take a little longer, but it’s really important that you do what’s best for you. We’re really keen to include you! Thanks in advance for your patience as we get things set up for you.

Tags: online, paper, post, mail, internet, access, accessibility, support, severe, call.

The largest ever DNA study of ME/CFS

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research