We understand that questionnaires can be very tiring for people with ME/CFS, particularly for those who are severely affected. The questionnaire will be designed to balance the need to capture a person’s relevant information with the need for brevity. We plan to offer a paper questionnaire as well as the online version. However, processing the paper questionnaires may well take longer, resulting in delays in receiving the saliva sample kit.

The largest ever DNA study of ME/CFS

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research