Frequently Asked Questions

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To maximise recruitment, will the online questionnaire be short? And will there be a paper questionnaire alternative, for those who struggle to use the Internet because of their illness or another reason?

We understand that questionnaires can be very tiring for people with ME/CFS, particularly for those who are severely affected. The questionnaire will be designed to balance the need to capture a person’s relevant information with the need for brevity. We plan to offer a paper questionnaire as well as the online version. However, processing the paper questionnaires may well take longer, resulting in delays in receiving the saliva sample kit.

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