We use the 2015 Institute of Medicine (IOM), now known as the National Academy of Medicine (NAM) criteria, or the 2003 Canadian Consensus criteria, but we will not be using the Oxford or NICE 2007 criteria. Given that people with ME, ME organisations, and ME/CFS biomedical researchers all regard Post-Exertional Malaise (PEM) as a defining symptom of the disease, this will be a mandatory symptom.
We undertook an online survey and the majority of people supported this. These criteria were also agreed at the MRC/NIHR Workshop with researchers, patients and carers.
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