Frequently Asked Questions


What happens if I don’t meet the criteria to enter in this study?

We’ll let you know whether your meet our criteria by your preferred contact method. If you don’t meet the criteria to be sent a spit kit, your questionnaire answers will still help us progress research. You will still have the opportunity to be contacted about future opportunities to be part of research if you have consented to this.

It’s important to note that not meeting our criteria doesn’t mean you don’t have ME/CFS. DecodeME uses narrow research criteria for scientific reasons and we expect many people with ME/CFS to fall outside them.

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The largest ever DNA study of ME/CFS

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research