Frequently Asked Questions


What if my data or sample creates an invention?

You’re providing your sample as a gift. You won’t receive any payment for your contribution. The Partnership won’t sell your data or sample.  Samples and data may be made available to other research institutions, in the public and private sector, in the UK and overseas, to help researchers make an invention. If an invention is created from research on your data or sample, you won’t receive any compensation or payment.

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The largest ever DNA study of ME/CFS

A partnership between

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Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research