Frequently Asked Questions


Wouldn’t it be better to back research to find a reliable biomarker first, to ensure participants in this kind of study actually have ME/CFS?

As yet, there is no such biomarker and despite some promising research, there is still no test that can reliably separate people with ME/CFS from people with other, similar diseases. We know that others around the world (e.g. StanfordHarvard and Uppsala) are actively pursuing biomarker research, and we hope they are successful. But there is no guarantee of success and the timescale to development is uncertain. So, it is our view that we should press ahead with our complementary approach.

Previous Why don’t researchers just do the analysis on all the existing UK ME/CFS Biobank samples to see what it reveals first?
Next How long will the GWAS study take to complete?

The largest ever DNA study of ME/CFS

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research