Updates

Science behind DecodeME uncovers potential Covid-19 treatments

December 14, 2020

Share this page: DecodeME’s Dr Veronique Vitart, Dr Shona Kerr and Professor Chris Ponting are among a group of researchers who have just published a study in the top science journal Nature on the role that genetics plays in severe Covid-19. Using the same technique that will power DecodeME, they found that people with particular DNA…

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Join our winter webinar Q&A

December 4, 2020

Share this page: Thank you to everyone who has shared and signed-up to support DecodeME so far. Our team has been working hard to get all the plans in place in readiness for recruiting people into the study. We are about to submit the application for ethical approval which needs to be in place before…

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Partnership update

November 30, 2020

Share this page: We’d like to update you on some changes to the Partnership team who are leading and delivering the DecodeME study. All aspects of the study, including recruitment, will now be led and delivered by the University of Edinburgh. The Edinburgh team has considerable expertise in managing studies that need large-scale recruitment, and…

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Funding announcement gets a big response

August 26, 2020

Share this page: We were blown away by the response when we announced funding for the DecodeME study in June. Thousands of people shared and posted on social media, and both The Times (paywall) and the Guardian ran articles. DecodeME coverage in The Times 17,400 people registered their interest on our new DecodeME website, in…

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DecodeME – Management Team live Q&A webinar

July 9, 2020

Chair of the Management Group Sonya Chowdhury, hosted a live Q+A webinar with Prof Chris Ponting, Prof Eliana Lacerda and Andy Devereux-Cooke, to answer some of the questions people have been sending in. Over 1,000 people tuned in live to watch with almost 7,000 watching on Facebook and YouTube since. The questions they didn’t have time…

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Join our webinar Q&A

July 2, 2020

Funding for the world’s largest genetic study into myalgic encephalomyelitis (ME), led by a partnership of patients and scientists, has been announced today.

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Patients, scientists and advocates celebrate £3.2m funding for DecodeME, the largest ever ME/CFS DNA study

June 23, 2020

Funding for the world’s largest genetic study into myalgic encephalomyelitis (ME), led by a partnership of patients and scientists, has been announced today.

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The largest ever DNA study of ME/CFS

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research