The world’s largest ME/CFS study
We have now closed participant recruitment and DNA sample collection, and moved onto the next crucial stage of the study.
If you are an existing participant, who has been invited to the complete the second questionnaire, you have until the 29 February 2024 at 5pm to do so online.
We thank all DecodeME participants for your on-going support!
Thank you to everyone who has given their precious energy and time to become a participant. We really appreciate everyone who has signed up and is giving their continuing support.
With our ground-breaking research, DecodeME aims to find genetic causes of why people become ill with Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS) .
The study should help us understand the disease and ultimately find treatments.
Watch our webinars to find out more
The study is being led by Professor Chris Ponting of the Medical Research Council Human Genetics Unit at the University of Edinburgh.
People with myalgic encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) are at the heart of the study, with a patient and a carer as co-investigators alongside the scientists and a steering group of people with the illness, carers and charities.
Sign up for newsletter updates
Submit your details below to receive email newsletters and stay up to date with news on the project. You can unsubscribe at any time.
Share this page (links open in new tab):
A partnership between