Join us to help create the world’s largest study of causes of ME/CFS

Our study aims to find root causes of why people become ill with ME/CFS.

We have secured funding for a very large study to analyse DNA from the saliva of people with ME/CFS to see whether the disease is partly genetic and if so, help pinpoint what causes it. The study should help us understand the disease and ultimately find treatments.

We need 20,000 participants – and people to help us find them. If you’re interested, please let us know now, so that when the study launches in autumn 2021, we can start reaching out to potential participants and collecting samples immediately.

It will be a huge challenge to do the largest ever biomedical study of ME/CFS so we need your help – whether you have ME/CFS or not!

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The largest ever DNA study of ME/CFS

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Are you outside the UK?
At launch, we'll only be recruiting in the UK. But we hope to find a way for everyone who wants to take part to do so in future. We're talking to other research groups about this, and if you sign up below, we'll keep in touch. You must be 16 or over to take part.

The study is being led by Professor Chris Ponting of the Medical Research Council Human Genetics Unit at the University of Edinburgh.

People with ME/CFS are at the heart of the study, with a patient and a carer as co-investigators alongside the scientists and a steering group of people with the illness, carers and charities. The work is funded by the Medical Research Council and the National Institute for Health Research.

To find out more about the study you can read our latest updates, FAQs and our explanation of the science.

This is an historic opportunity for people with ME/CFS and we look forward to working with you to make it happen.

Complete this short form to get involved:

Please sign up for our newsletters. If you're in the UK, you'll be first in line when we go live in the autumn. If you're outside the UK, we'll let you know if there's a chance to take part in future.
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