Frequently Asked Questions
The Q&A below was created by people with ME/CFS working with the project team and science blogger and patient, Simon McGrath. It will be updated as the project progresses.
If you have a question that is not answered here please get in touch with our team.
Frequently Asked Questions
The science/research
- What is a genome-wide association study?
- How will the study ensure that all participants recruited to the trial really do have ME/CFS?
- What case definitions will be used (specifically, what about the Oxford and NICE criteria)?
- Will you be asking people with ME/CFS to send in documentary evidence of their diagnosis along with the questionnaires?
Registering for the study
- How can people with ME/CFS take part?
- Can those who are severely affected take part?
- To maximise recruitment, will the online questionnaire be short? And will there be a paper questionnaire alternative, for those who struggle to use the Internet because of their illness or another reason?
- What’s the minimum age for taking part?
Public/patient involvement
Your saliva sample
- If I or a member of my family household have COVID-19, can I still provide my saliva sample?
- How can I return my DNA kit sample?
- Why it’s important not to eat, drink, smoke, brush your teeth or chew gum before providing your sample?
- What happens if I do not finish the questionnaire or provide my saliva sample?
Completing the questionnaire
Latest updates
Share this page:
The largest ever DNA study of ME/CFS
A partnership between
