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Frequently Asked Questions

The Q&A was created by people with myalgic encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) working with the project team and science blogger and patient, Simon McGrath. It will be updated as the project progresses.

If you have a question that is not answered here please get in touch with our team.

Frequently Asked Questions

About the study

The science/research

Registering for the study

Completing the DecodeME questionnaire

Your saliva sample

Post-Covid Participants

Public/patient involvement

Latest updates

The largest ever DNA study of ME/CFS

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research
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