Frequently Asked Questions


Will you be asking people with ME/CFS to send in documentary evidence of their diagnosis along with the questionnaires?

No, we won’t be asking them to send in evidence: making a declaration that they have a clinical diagnosis and completing the questionnaire is sufficient (see previous question). This does mean that someone could falsely claim to have an ME diagnosis and access the questionnaire part of the study. But: (1) we feel that the number of people who might do so will be too small to be significant, and (2) we would anyway prefer to keep the barriers to taking part to a minimum for patients.

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The largest ever DNA study of ME/CFS

A partnership between

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National Institute for health research