No, we won’t be asking them to send in evidence: making a declaration that they have a clinical diagnosis from a health professional and completing the questionnaire is sufficient. This does mean that someone could falsely claim to have an ME diagnosis and access the questionnaire part of the study. But: we feel that the number of people who might do so will be too small to be significant across a cohort of 25,000, and we prefer to keep the barriers to taking part to a minimum for patients by not requiring them to provide evidence.


Read our FAQ on what criteria will be used.

Watch our webinars to find out more

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research