A recent breakthrough in migraine treatment shows, indirectly, how big DNA studies like DecodeME can help find highly effective drugs for patients. Traditional biological research some years ago identified a pair of proteins as being involved in triggering migraines. This insight recently led to clinical trials of new, high-tech monoclonal antibody drugs that target those…

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Important update: DecodeME will launch a few weeks later than planned. We know how important this study is to you and everyone in the M.E./CFS community, so we need to make sure everything is 100% right before launching for the 27,000+ people already interested in taking part. Data protection is one of the things we…

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DecodeME will be the world’s largest genetic study of Myalgic encephalitis (ME) / Chronic Fatigue Syndrome (CFS). The current largest is by the UK Biobank, which analysed the DNA of people with self-reported CFS. Has the study help unravel the genetic secrets of ME/CFS? Here’s what we learned from a paper just published. Quick summary:…

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The transformation needed for people with the chronic, disabling disease/s Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) is huge.  Sonya Chowdhury, Chief Executive of Action for M.E. and Chair of DecodeMe’s Management Group, writes. For many years, children, adults and their families have faced significant stigma, neglect and disadvantage. This has been further compounded by low levels of funding for biomedical…

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Share this page: Share on Facebook Share on Twitter Share on LinkedIn Share on Email Following our second Management Group webinar held in December 2020, in which DecodeME’s Chris Ponting, Andy Devereux-Cooke, and Sonya Chowdhury were joined by SolveME’s Sadie Whittaker to answer your questions on the study, a full transcript of the webinar has…

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Share this page: Share on Facebook Share on Twitter Share on LinkedIn Share on Email Today, we know almost nothing for sure about what causes ME/CFS. We do know that the illness can be triggered by certain infectious diseases, such as glandular fever. But we don’t know why most people recover from those infections but…

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Share this page: Share on Facebook Share on Twitter Share on LinkedIn Share on Email DecodeME’s Dr Veronique Vitart, Dr Shona Kerr and Professor Chris Ponting are among a group of researchers who have just published a study in the top science journal Nature on the role that genetics plays in severe Covid-19. Using the same…

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