Frequently Asked Questions

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How will you use the survey, biological and genetic information that people provide?

Our goal is to identify causes of ME/CFS. For this we will first isolate and analyse patients’ DNA from the saliva sample. We will then look at around a million common variants in DNA and see if any of the variants are more or less common in patients than seen in control individuals. Survey data such as age, type of onset and symptoms will be used to gain a better understanding of patients’ background and illness and we will link this survey data to their genetic data.

We may also ask patients if they are willing to provide us access to their electronic health record, with personal clinical information kept by their GPs. This would help us to get a more detailed understanding of patients’ illness, progression and symptoms, but would be entirely optional and will not affect eligibility for the study.

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The largest ever DNA study of ME/CFS

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research