The project will be led and delivered by the University of Edinburgh and Action for M.E., and the composition of the management group has been updated to reflect that. You can find out more about who is involved in the Partnership and their role here.


There have been changes to partnership since the project began, however, these have all been supported by the Patient and Public Involvement Steering Group (PPI SG) and have all had the study’s best interests at heart. The changes have not resulted in changes to the criteria for involvement in the study and the study has continued to meet high scientific standards in delivering the study.

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A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research