Frequently Asked Questions


When does the study start?

Were pleased to announce recruitment will start in January 2022, and this will happen in two phases.

First, a test phase with randomly chosen participants allowing us to check everything is working well and get feedback. We will then open full recruitment to everyone soon after.

This is a few months later than we hoped. We know this wait feels like a long time when people with ME/CFS have waited so long for a study like this to happen. Thank you so much for bearing with us.

Read the full launch update. If you’ve registered your interest in the study using the online form or by calling the Action for M.E. helpline, you will receive an invite when you can take part.

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The largest ever DNA study of ME/CFS

A partnership between

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UKRI MRC Human Genetics Unit logo
National Institute for health research