The study launched its testing phase in January 2022, which focussed on the paper questionnaire and the telephone assistance options we are providing. The online questionnaire testing phase will next be completed before the study can fully open recruitment to everyone.

This important testing phase with randomly-chosen participants allows us to check everything is working well and get feedback before we ask 25,000+ participants to take part.

The full recruitment launch is later than we hoped. We know this wait feels like a long time when people with ME/CFS have waited so long for a study like this to happen, but we hope you will agree that it is crucial to ensure everything works well before asking people with ME/CFS to use their energy on participating. Read the launch update blog post. Meanwhile, if you’ve registered your interest in the study using the online form , you will receive an invite when you can take part.

The largest ever DNA study of ME/CFS

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research