Your participation in the Data Access process is entirely voluntary. You are free to change your consent status at any time.

If you are a DecodeME participant and wish to change your consent status, either to make your data available for data access, or to withdraw your consent, please contact the DecodeME project team at We will be happy to update your consent status for you.

To understand the different options available, have a look at the consent form on page 2 of this document.

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A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research