Gaining a better understanding of how ME/CFS affects people is the first step to developing effective treatment options.


Our initial findings highlight the differences in peoples experience of ME/CFS and this will help to inform the knowledge base on ME/CFS and guide future research.


Additionally, the DNA stage of the study aims to identify biological causes of the illness. For more information on how this can inform research and treatments read our blog post: DecodeME – A Treasure Map. 

Watch our webinars to find out more

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research