Frequently Asked Questions


What happens if I do not finish the questionnaire or provide my saliva sample?

We’ll send you up to three reminders for each situation, to help you participate. There isn’t a time limit on how fast you need to fill in the questionnaire or provide your saliva sample, but it helps us if you do this as soon as you can.

If you don’t finish your questionnaire or return your sample, you won’t be participating in this study.

If you’ve changed your mind about taking part and don’t want to do so, you can pull out from further involvement of the study at any time, without giving a reason. Just contact us by phone, email or letter and ask for no further contact.

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The largest ever DNA study of ME/CFS

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research