Frequently Asked Questions


Can people from outside the UK participate? If not, why not? Would it be possible to develop an international ‘Plan B’ in parallel with planning UK recruitment efforts?

Our ‘Plan A’ is to recruit within the UK only, and that is how we will start the study. We do have a ‘Plan B’ which is to recruit other, non-UK participants.

It’s important to say, however, that our study needs data for a large set of “control” (non-ME/CFS) individuals, and in the UK, this will be the half-million-strong UK Biobank. The ancestry of these individuals should be matched to that of people with ME/CFS, and so this requirement for proper matching narrows down the sets of non-UK patients that we could recruit.

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The largest ever DNA study of ME/CFS

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