Frequently Asked Questions


Can people from outside the UK participate?

Our ‘Plan A’ is to recruit within the UK only, and that is how we will start the study. We do have a ‘Plan B’ which is to recruit other, non-UK participants.

It’s important to say, however, that our study needs data for a large set of “control” (non-ME/CFS) individuals, and in the UK, this will be the half-million-strong UK Biobank. The ancestry of these individuals should be matched to that of people with ME/CFS, and so this requirement for proper matching narrows down the sets of non-UK patients that we could recruit.

We hope to find a way for everyone who wants to take part to do so in future. We’re talking to other research groups about this, and if you sign up we’ll keep in touch.

Tags: International, Europe, US, Northern Ireland, Ireland, Republic of Ireland, abroad, foreign.

Previous Can people who have improved or recovered participate?
Next Will you be recruiting healthy controls?

The largest ever DNA study of ME/CFS

A partnership between

Action for ME logo
Forward ME Logo
UKRI MRC Human Genetics Unit logo
National Institute for health research