Although the initial results of DecodeME are now available, we are not finished. We’ll continue to analyse the genetic data, and we will update our scientific paper as needed before it is peer reviewed and published. We also have a detailed and valuable dataset from the second questionnaire that focused on symptoms, quality of life, treatments and therapies. We will be analysing and reporting on this in due course.

Our work doesn’t end there. Approved researchers will be able to use the data of those who consented through our data access process, helping to catalyse new studies and discoveries.