Quick summary: Great news! DecodeME opens for first participants this month.
Recruitment will happen in two phases. Phase 1 opens on January 31 for around 550 people. Once we’re sure everything is running smoothly, we’ll open the study for everyone with ME/CFS in the UK (Phase 2).
You can sign up to attend live on Zoom or wait for us to email you the recording and transcript later.
More information if you have time and energy:
Great news! DecodeME will launch this month. We’re excited to invite the first participants on January 31.
Then we’ll invite up to 500 of online participants, chosen randomly, to take part in the study online.
This testing of our paper, telephone and online processes means we can make any improvements based on patients’ feedback. With over 30,000 people waiting to take part, we need to make sure the process is as smooth and inclusive as possible and the right support is in place.
Once we’ve completed this process, we will let you all know we’re ready for the full launch.
On this month’s webinar, Sonya Chowdhury and Chris Ponting will explain the recruitment process.
Claire Tripp, a carer and part of the study’s Patient and Public Involvement steering group, will explain the important role ME/CFS patients and carers play in making the study as inclusive as possible.
Patients Life of Pippa’s Pippa Stacey and Blue Sunday: the Tea Party For ME creator Anna Redshaw will appear in video messages, explaining their roles talking to the online ME/CFS community about the study and encouraging people to register. Register for the webinar.
Thank you so much for your patience. We can’t wait to share the study with you soon.