We’d like to update you on some changes to the Partnership team who are leading and delivering the DecodeME study.

All aspects of the study, including recruitment, will now be led and delivered by the University of Edinburgh. The Edinburgh team has considerable expertise in managing studies that need large-scale recruitment, and so the required scientific standards are maintained. The London School of Hygiene & Tropical Medicine will no longer be involved.

This decision is fully supported by remaining members of the Partnership, including the Patient and Public Involvement Steering Group.

In all other aspects, DecodeME continues as planned and the study’s Management Group and funders (the Medical Research Council and National Institute for Health Research) are confident that the objectives for the study will be achieved.

We will continue to provide regular updates on our website and by email to everyone who has requested updates. If you haven’t yet signed up for updates, you can do so here.

Meanwhile, we continue to seek people with ME/CFS to register their interest in this vital study. You can help us make this project a success:

If you have ME/CFS and haven’t yet registered your interest in taking part in the DecodeME study, please do so now.

If you know someone with ME/CFS who might not have registered yet, please let them know about the study.