Support and Resources
If you need support with any aspects of having ME/CFS (like getting a diagnosis or seeking treatment), we have put together a list of resources to help you.
Free for anyone living with or supporting someone with M.E./CFS of any age, anywhere in the UK. The team can support you by phone and email to help break issues down so they feel less overwhelming, explore priorities and possible next steps, and send you useful information and resources. They can also refer you to Action for M.E.’s free independent Advocacy for children and adults with M.E.; and free Family Support for parents of young people with M.E.
Individually tailored whole-person care, from doctors, physiotherapists, counsellors and chaplains. As a charity, Action for M.E. charges fees for their Healthcare Services only to cover their costs, and a bursary for up to 50% of fees may be available, depending on your circumstances.
Action for M.E.’s free helpline for adults affected by M.E., offering a listening ear so you can talk through the things on your mind. You don't need to have a diagnosis, and they welcome calls from carers and family members.
Action for M.E.’s free, friendly online forum is open to anyone aged 18 or over affected by M.E., including carers.
Free peer-support service, including a safe and secure online forum, monthly e-magazine written by and for young people with M.E., pen pals, buddy writers for those severely affected, and birthday cards sent to every member.
The charity runs a telephone helpline and has online resources.