Posts Tagged ‘MECFS’
January webinar: Recording & Transcript
ME/CFS patients and a carer made their voices heard on our January 2022 webinar. Patients Life of Pippa’s Pippa Stacey and Blue Sunday: the Tea Party For ME creator Anna Redshaw explained their roles talking to the online ME/CFS community about the study and encouraging people to register. Claire Tripp, a carer and part of…
Read MoreMigraine drug shows how big DNA studies can help find treatments
A recent breakthrough in migraine treatment shows, indirectly, how big DNA studies like DecodeME can help find highly effective drugs for patients. Watch the easy to follow one minute video, or continue to read the article. Traditional biological research some years ago identified a pair of proteins as being involved in triggering migraines. This insight…
Read MoreImportant update & first look at ‘spit kit’
Blog updated November 2021: DecodeME will launch in the new year. It will launch in two phases, the first starting in January 2022. Read the full update. Important update: DecodeME will launch a few weeks later than planned. We know how important this study is to you and everyone in the M.E./CFS community, so we…
Read MorePeople with ME/CFS need big change. Research & collaboration can fuel this.
The transformation needed for people with the chronic, disabling disease/s Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) is huge. Sonya Chowdhury, Chief Executive of Action for M.E. and Chair of DecodeMe’s Management Group, writes. For many years, children, adults and their families have faced significant stigma, neglect and disadvantage. This has been further compounded by low levels of funding for biomedical…
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