No, we won’t be asking them to send in evidence: making a declaration that they have a clinical diagnosis from a health professional and completing the questionnaire is sufficient. This does mean that someone could falsely claim to have an ME diagnosis and access the questionnaire part of the study. But: we feel that the number of people who might do so will be too small to be significant across a cohort of 25,000, and we prefer to keep the barriers to taking part to a minimum for patients by not requiring them to provide evidence. Furthermore, our DecodeME questionnaire has been designed to ensure that all participants meet the study criteria and do in fact have ME/CFS according to the IOM (now NAM) or CCC case definitions.


Read our FAQ on what criteria will be used.

The largest ever DNA study of ME/CFS

A partnership between

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UKRI MRC Human Genetics Unit logo
National Institute for health research