🧬 Behind-the-scenes: what we’re doing [December 2021]

The DecodeME launch is just weeks away! We’re busy behind-the-scenes getting the world’s largest genetic study of ME/CFS ready for people like you to take part. With over 28,000 people from all over the UK waiting for their invite, we’re working hard to make sure this large science study runs smoothly. Here are some of the tasks we’re working on: 1.…

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[Webinar recording & transcript] Why patient involvement is crucial

We held our Winter Webinar in mid-November. Sonya Chowdhury, Chris Ponting and Sian Leary from the DecodeME team updated on study progress, explained why involving patients and carers is vital in this study, and answered your questions. If you were unable to join live you can access the recording in your own time: Read the…

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Migraine drug shows how big DNA studies can help find treatments

A recent breakthrough in migraine treatment shows, indirectly, how big DNA studies like DecodeME can help find highly effective drugs for patients. Watch the easy to follow one minute video, or continue to read the article. Traditional biological research some years ago identified a pair of proteins as being involved in triggering migraines. This insight…

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What we learned from the current largest genetic study into M.E./CFS

DecodeME will be the world’s largest genetic study of Myalgic encephalitis (ME) / Chronic Fatigue Syndrome (CFS). The current largest is by the UK Biobank, which analysed the DNA of people with self-reported CFS. Has the study help unravel the genetic secrets of ME/CFS? Here’s what we learned from a paper just published. Quick summary:…

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