Uncategorized
Statement on Launch Day
We want to let you know that DecodeME has launched and fully opened recruitment. In light of Her Majesty Queen Elizabeth II’s death and this period of national mourning, we seriously considered how best to proceed with the planned launch of this study today. We recognise how much this study means to people…
Read MoreDecodeME Questionnaire Webinar: Q&A
(SONYA) Thank you, Sian. And thank you, Chris. We’ve got lots of questions coming in, which is fantastic. As always, we’ll try our best to answer as many of them. But just to remind you as well, we do have a Frequently Asked Questions on the DecodeME website, so if you want to, you can…
Read MoreDecodeME Questionnaire: The new DecodeME questionnaire – improvements made with PPI
(SIAN) Hello, everyone. Fantastic to be speaking to you all today and see so many people watching. My name is Sian Leary and I’ve lived with M.E. for over nine years now. I spent the first four to five years severely affected, but I’m fortunate to be in a better period at the moment, and…
Read MoreDecodeME questionnaire webinar: Taking part in DecodeME: the questionnaire
(CHRIS) Hello, all. I’m just going to share my screen, and hopefully you’ll see my slides now. So my name is Chris Ponting. I’m a human genetics researcher at the University of Edinburgh, and I’m very excited because we’re now almost at the full launch of DecodeME and it feels as if we altogether have…
Read MoreDecodeME Questionnaire webinar transcript: study launch update
(SONYA) Hi, everybody. Welcome to another DecodeME webinar. My name is Sonya Chowdhury. I’m Chief Executive of Action for M.E., and I’m also part of the DecodeME team, so I’m going to be sort of chairing the webinar today. I’m going to start off by giving you a bit of an update and then I’m…
Read MoreScience webinar transcript: Your scientific questions answered
Your scientific questions answered: So what we’re going to do now is look at some of the questions that have been posed to us already via email. And I’ll start with one that was sent in earlier. And I have to say at the start that I’m not a clinician, so I won’t be able…
Read MoreScience webinar transcript: The science behind genetics and the genetics of ME/CFS
The science behind genetics and the genetics of ME/CFS: Chris: Thank you, Shona, and it’s a delight to have you as part of the team. So what we’re going to do now is I’m just going to talk you through some of the science behind genetics and about the genetics of ME, and then we’re…
Read MoreScience webinar transcript: Introductions from Chris Ponting and Shona Kerr
Introduction: Chris: I would like to welcome you to a recorded science session focused on the DecodeME project. My name is Chris Ponting. I’m a researcher. I’m very much interested in ME and finding out what are the genetic causes of ME. Just again, I want to welcome you to this meeting and to set…
Read MoreWebinar transcript: Project update from Chris Ponting
Chris Ponting’s update on study progress (January 2022) from our webinar: It’s a very complicated study, as has been said. So we have done a whole variety of things. We’ve got permission from the UK Biobank to use the data which we need for the comparison with the general population. So this is a UK-based…
Read MoreWebinar transcript: Q&A on the ME/CFS study
Our team answered your questions during our January 2022 webinar: Sonya: We’re going to take some questions and answer, going to take some questions in a moment but I do just want to flag that we do have a frequently asked questions section on the website www.DecodeME.org.uk. So I’m now going to kick off the questions by…
Read More