Updates
Your scientific questions answered: So what we’re going to do now is look at some of the questions that have been posed to us already via email. And I’ll start with one that was sent in earlier. And I have to say at the start that I’m not a clinician, so I won’t be able…
Read MoreThe science behind genetics and the genetics of ME/CFS: Chris: Thank you, Shona, and it’s a delight to have you as part of the team. So what we’re going to do now is I’m just going to talk you through some of the science behind genetics and about the genetics of ME, and then we’re…
Read MoreIntroduction: Chris: I would like to welcome you to a recorded science session focused on the DecodeME project. My name is Chris Ponting. I’m a researcher. I’m very much interested in ME and finding out what are the genetic causes of ME. Just again, I want to welcome you to this meeting and to set…
Read MoreQuick summary: DecodeME has welcomed its first test participants and has received valuable feedback from them. We are working to make improvements to the questionnaire after receiving feedback from these participants in the testing phase. We are creating a new online system for the online questionnaire as we are no longer working with the questionnaire system adapted…
Read MoreWe asked our Chief Investigator on the DecodeME study, Chris, to compare his experiences working on both the Human Genome Project and DecodeME: Two projects, twenty years apart. The first sequenced the human genome; the second explores the DNA of people with ME. Two very different projects, you’d think, in scale, impact and cost.…
Read MorePeople with ME/CFS want effective treatments. To find treatments, researchers must first find the causes of ME/CFS. Despite having several promising lines of enquiry, the causes of ME/CFS remain unknown. A genetic study can help because DNA studies are particularly good at identifying the root causes of disease. The problem: biological differences might not reveal…
Read MoreSince DecodeME – the biggest ever study into ME/CFS – was announced, tens of thousands of people have been patiently waiting to take part. A project of this size and nature takes an extraordinary amount of work. Delays and setbacks are inevitable but, in January 2022, we launched the study – starting with a small…
Read MoreChris Ponting’s update on study progress (January 2022) from our webinar: It’s a very complicated study, as has been said. So we have done a whole variety of things. We’ve got permission from the UK Biobank to use the data which we need for the comparison with the general population. So this is a UK-based…
Read MoreOur team answered your questions during our January 2022 webinar: Sonya: We’re going to take some questions and answer, going to take some questions in a moment but I do just want to flag that we do have a frequently asked questions section on the website www.DecodeME.org.uk. So I’m now going to kick off the questions by…
Read MorePatients Life of Pippa’s Pippa Stacey and Blue Sunday: the Tea Party For ME creator Anna Redshaw appeared in video messages on our January 2022 webinar, explaining their roles talking to the online ME/CFS community about the study and encouraging people to register. Sonya Chowdhury: So we’re now going to hear from, we’ve got two…
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