Week One of DecodeME’s Launch

Over 10,000 people signed up to take part in our first week with over 7,000 already completing the questionnaire.


We’re delighted by the huge number of people supporting the study in this first week and we’d like to thank you for your patience as we work to respond to emails and phone calls.


We are sorry that there has been a delay in notifying all who’ve completed their questionnaire about whether we’re also going to ask for their DNA sample. If you have already completed your questionnaire, you will find out via email early next week. So, keep an eye out on your inboxes.


We would like to emphasise that you can take your time to complete the questionnaire and still have plenty of time to do so.


Even if you are not asked to also provide a DNA sample, your contribution to the study is already invaluable and the information you provided us will help our researchers learn more about ME/CFS which will also guide future research.


Your experience matters and we are so grateful to everyone who shares that with us!


Please help us keep momentum going by spreading the word about the study so that even more people can take part and complete our questionnaire. You can help spread the word by visiting our Ways to Share page.


If you haven’t yet signed up, you can still take part.


There is still plenty of time for more people to take part and we want everyone to do so at their own pace and in their own time.