Updates
DecodeME will be the world’s largest genetic study of Myalgic encephalitis (ME) / Chronic Fatigue Syndrome (CFS). The current largest is by the UK Biobank, which analysed the DNA of people with self-reported CFS. Has the study help unravel the genetic secrets of ME/CFS? Here’s what we learned from a paper just published. Quick summary:…
Read MoreThe transformation needed for people with the chronic, disabling disease/s Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) is huge. Sonya Chowdhury, Chief Executive of Action for M.E. and Chair of DecodeMe’s Management Group, writes. For many years, children, adults and their families have faced significant stigma, neglect and disadvantage. This has been further compounded by low levels of funding for biomedical…
Read MoreHow do you find treatments for a disease like ME/CFS, where nothing is known for sure about its causes? One way scientists can now look for answers is with very large DNA studies, like DecodeME. This fairly new approach is already giving insights and pointing to treatments for a range of illnesses, including rheumatoid arthritis,…
Read MoreWe are sorry again for all those who could not join our April webinar because of the technical issues we were experiencing. We recorded the webinar in which DecodeME’s Chris Ponting, Andy Devereux-Cooke, and Sonya Chowdhury were joined by SolveME’s Sadie Whittaker to talk about participating in the study and a full transcript of the…
Read MoreWe’d like to update you on the recruitment start date for the DecodeME study, and tell you about an upcoming Q&A webinar on the steps involved in joining. As you might expect, we’ve faced some delays due to the pandemic. We’ve also adjusted our pace on aspects of our preparation, to make sure that people with ME/CFS could fully contribute to this…
Read MoreShare this page:[scriptless] Following our second Management Group webinar held in December 2020, in which DecodeME’s Chris Ponting, Andy Devereux-Cooke, and Sonya Chowdhury were joined by SolveME’s Sadie Whittaker to answer your questions on the study, a full transcript of the webinar has been made available. Produced by our brilliant team member and ME patient,…
Read MoreShare this page: [scriptless] Today, we know almost nothing for sure about what causes ME/CFS. We do know that the illness can be triggered by certain infectious diseases, such as glandular fever. But we don’t know why most people recover from those infections but a minority instead develop ME/CFS. There are many competing hypotheses about…
Read MoreShare this page (links open in new tab): [scriptless] Chair of the Management Group Sonya Chowdhury, hosted DecodeME’s second live webinar with Prof Chris Ponting, Andy Devereux-Cooke, and Solve ME’s Sadie Whittaker to answer more of your questions. Thank you to all those who attended the live webinar on our Facebook page. We hope we…
Read MoreShare this page (links open in new tab): [scriptless] DecodeME’s Dr Veronique Vitart, Dr Shona Kerr and Professor Chris Ponting are among a group of researchers who have just published a study in the top science journal Nature on the role that genetics plays in severe Covid-19. Using the same technique that will power DecodeME, they…
Read MoreShare this page: [scriptless] Thank you to everyone who has shared and signed-up to support DecodeME so far. Our team has been working hard to get all the plans in place in readiness for recruiting people into the study. We are about to submit the application for ethical approval which needs to be in place…
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